The Beamer Hughes Foundation Dear Stephanie Hughes, Joe Huber and our Beamer Hughes Foundation family, I want to express to all of you my sincere gratitude for providing the funds to purchase my new Invacare MA65 Alternating Pressure System mattress. The mattress is wonderful and is protecting against health issues that otherwise would most certainly surface and cause serious problems. Itís like sleeping on an air mattress that gently alternates pressure points while increasing blood flow. Amazing, and very comfortable. Iím sleeping like a babyÖa big, bald baby with a beard. Now thereís a scary picture! This isnít the first time you have helped us and there arenít words that can adequately express my appreciation for all you have done. The words ďThank YouĒ hardly seem enough. The generosity of The Beamer Hughes Foundation is helping to ease the burdens of so many people in our area that are battling muscular diseases. Good people doing great things. Keep up the good work. Beamerís spirit is alive and touches each and every one of us with your generosity. Sincerely, Scott Scott Maxson
Hello, I just wanted to take this time to thank¬ The Beamer Hughes Foundation for providing funding for the Tecla Shield. An assistive technology device that allows me to use my smartphone independently, it has opened many doors to me ¬ that were once closed. I have the ability to make phone calls, send texts and use apps entirely independently, it's great! Thank you again and again, without your help it would of been far more difficult to get this amazing technology that increases my quality of life and allows me to access the world in many ways that I couldn't before. Not sure what else to say, I'm so glad to live near such a great foundation, I know many people in my very situation but they don't have funding like this near them. I feel very blessed, thanks! Jon Gardner
Dear Stephanie and everyone at the Beamer Hughes Foundation: Wyatt, Todd and I want to thank the Beamer Hughes Foundation for your wonderful gift you provided Wyatt. His Rifton chair has helped him in many ways with his independence. You are very inspiring and the Rochester community is very lucky to have such a caring organization. Thank you for inviting us to the Golf Tournament dinner we were very honored to attend. Please let us know if you need volunteers for anything, anytime. Sincerely, The Fox Family
June , 2014 MDA Summer Camp-Rotary Sunshine Campus-Rush, NY.
June , 2014 MDA Summer Camp-Rotary Sunshine Campus-Rush, NY.
The Beamer Hughes Foundation received the attached Certificate of Appreciation from the Canine Helpers for the Handicapped, Inc. which is helping Amy White and her dog Mac become Amy's service dog. Amy has muscular dystrophy and lives here in Rochester as well. Mac will be a tremendous help to and for Amy and we are honored to help. On behalf of the Beamer Hughes Foundation, thanks to all of you for making this and so many other needs of children and adults with muscular dystrophy throughout each month of every year possible.
Dear Stephanie and Beamer Board Members, It is with extreme gratitude the nurse practitioners of the Neuromuscular Disease Center (Deb Guntrum and Cindy Gibson) accept the generous gift of a Dell laptop to enhance our work capabilities. The computer arrived last week, and I am learning how to use a laptop for the first time, which is somewhat challenging given the University's protection system. Having the computer will make creating educational presentations easier and allow us access to patient's charts when preforming home visits. No longer will we be tied to an office computer allowing for improved patient care. Improving patient communications and enhancement of creating presentations for neuromuscular education are just some of the immediate benefits of the new computer. Through the generosity of the Beamer Foundation our area neuromuscular patients will gain improved access to care. Thank you again for your generous support of our Neuromuscular Disease Center. Sincerely, Cindy Gibson, ANP
Dear Stephanie: Just a quick note to sincerely thank you for your generosity in purchasing a new scooter for me!! I appreciate your kindness so much and am really enjoying the new scooter!! The new scooter allows me the freedom to travel alone and to continue my volunteer work. I don't know what I would have done without your kindness. This is the best gift for 2014!! Sincerely, Leanne Gallipeau
Thank You from the Foryt Family Stephanie and the Beamer Hughes Foundation Board and Committee Members: Thank you very much for the generous donation of over $1,500.00 for our two sons (Blake and Matthew DiPasqualie from Fairport, NY) to receive adaptive physical therapy. The weekly therapy they receive helps with their flexibility, core strength and physical conditioning. They both enjoy the time with the therapist and we have seen an improvement in their physical abilities as a result of their training. Even their energy levels have improved. Without the assistance of the Beamer Hughes Foundation, the therapy might not be possible for two boys with muscular dystrophy who need it. We can't thank you and the Foundation enough for your generosity. Kristie and Tobin Foryt
Sent: Saturday, March 16, 2013 4:32 PM Subject: Thank you I just wanted to say a word of thanks. I'm a patient at the Strong Neuromuscular clinic. I've got a progressive muscle disease which makes many common tasks more and more difficult as time goes by. One of the things that's already very difficult is standing up out of a chair unassisted. I'm still quite able to walk once I'm up and moving, but getting up out of that chair, well, that's not so easy anymore. So, waiting rooms in doctor's offices, or really any similar place, are never fun. Many times I'll just stand until my legs are getting painful, just because I'm not too sure how or if I could make it up out of the chair. Even going to the clinic there at Strong where I'm going because of the disease has been no exception. Until this last week, when I went in for my appointment and saw that your Foundation has donated a pair of chairs designed to make matters easy for someone in my position. I can't tell you how I smiled when I saw that. So, I wanted to express my gratitude. Something like a pair of chairs may seem like a small thing, but it makes a big difference. Thank you very much for your generosity! Rick Thompson
February 20, 2013 Mrs. Stephanie Hughes and the Board of Directors and Committee Members The Beamer Hughes Foundation To Stephanie and all the Board of Directors and Committee Members: I want to thank every one of you for providing me with a seat elevation feature for my new power wheelchair. This feature is a huge and important benefit for me for me to have on my chair as it helps me to be more independent and perform daily life activities that many people take for granted. This feature also helps my Dad and nurses with my transfers in and out of bed as well as to and from the toilet. I use the seat elevation feature many, many times throughout the day. Thank you to everyone for all that you do to help both children and adults with muscular dystrophy. I know it takes time, hard work and commitment throughout the year to plan and organize the Annual Walk for Beam and Beamer's Golf Classic, and we are so appreciative! Thank you for helping people like me and so many others in need. My new chair is awesome! It has helped with my sciatic nerve problems, transferring, reaching light switches and doors, changing positions so I don't get sores, and it makes it easier for me to be independent with tasks such as being able to get the mail due to being able to raise the seat up to reach the mail box. My Dad, nurses, and I are very grateful for everything you have done to make it possible for me to have the seat elevation feature on my new power wheelchair and helping so many other children and adults with muscular dystrophy too. We cannot thank you enough for all your hard work, dedication and generosity. Sincerely, Michelle Brennan Grant Recipient
Click for Thank You Note from Matthew Willis
Dear Stephanie and the Beamer Hughes Foundation Board:
What a tremendous gift you gave the Neuromuscular Disease Clinic through the purchase of two elevated waiting chairs for ourpatients use. Most people do not realize the difficulty someone has when weakness strikes the hip area. Traditional height chairs are almost impossible for our patients to get out of with the only other option to have someone stand and wait. Already we have seen people gravitate to using the new chairs when they know standard chairs are too much work to arise from. Knowing our clinic has thought about the needs of muscle patients makes people feel welcome and at ease. It is through the thoughtfulness and generosity of the Beamer Hughes Foundation the Neuromuscular Disease Clinic is better able to serve the needs of our patients. The wheelchair scale previously purchased is used by hundreds of patients each week. Getting accurate weights is critical for patients at risk for swallowing dysfunction and malnutrition. Additionally we prescribe medications which are weight based and current, accurate weights allow timely titrating for better management. Thank you for all you do to help our clinic better serve our patients. It is through partnership with Foundations like yours we are better able to serve the needs of all the people we serve. With heartfelt gratitude, Cindy Gibson, ANP
Cynthia Gibson, ANP
Neuromuscular Disease Center
601 Elmwood Avenue, BOX 673
Rochester, NY 14642
The Beamer Hughes Foundation sending children ages 6 to 21 years old with muscular dystrophy to Summer camp held at the Rotary Sunshine Campus in Rush, New York every year since 2000. Thank you for your donations which makes this all possible!